Floods of tears all becauseof a song!!!!

Why is you can be driving home from work when suddenly a song comes on the radio and you realise tears are flowing down your cheeks and all for no aparent reason!! This is exactly what happened to me today on my way home from shopping. A sugarbabes song called changes came on the radio and i guess it just related to everything that is going on in my world at the moment!! Nothing is ever how you plan it to be and things can change over night so people should be thankfull or what they have got although i have to agree it is never enough and we allways want more
This week has been another busy week at work, rushing around not getting a lot done most of the week but then again i have spent lots of time doing things i enjoy with our residents so its just paper work to catch up on. Once again i have got to the end of the week and i am absolutely exhausted to a point of collapse!! I wish i could just convince myself to give up ceratin things but i am stubborn cow and feel like if i cut my hours then i am letting myself and others down!! I have realised this week how much i have given up allready i never go out anymore as i am just to tired by the evenings.
I did force myself to walk into town one afternoon after work but felt really rubbish and out of breath half way and then had to struggle back!!  I am sure life used to be easier then this!!!
The cold weather has hit hard which doesnt help anyonw i guess but i particularly hate the cold and so does my body.
Well at least i have the weekend of but yet again what a waste of a weekend as  i am gonna spend it sitting on the sofa or inbed trying to regain some strength for another week. I am starting to feel like i am existing rather than living lets hope things can get a bit better!!
Enough of my mubling on now of to culr up on my sofa for a little sleep me thinks!!!!!

Sarah
xxxxxxx

should be grateful for those around me!!

Today I realised just how lucky I am!! Firstly I have so many people around me that care and want to help! I just need to start using them I think!!
Secondly I have the most fabulous medical team around me thAt bend over backwards to help and support me!!
Have decided that this week I am going to have to take it easy!! Either that or I will end up in hospital which is not an option!! I just hope people will understand and let me do what I can!!

bad ending to a bad week!!

Finally managed to write my open university assignemnt and it was acutally easier than  thought i am not sure why i was putting it of!! well i say that but we will see when i get the marks!!
Took grandad to the opticians today and that was funny, he obviously hasnt been to a town for years and he was quite funny. managed to get his glasses sorted and i had my eyes tested, one part of my body that is fine as didnt need new glasses which is one good thing.
Got home and again fainted, very bizarre feeling and it seems my body can not cope with doing anything at the moment, i thought i felt better yesterday but very short lived. Aday on the sofa for me  and doing not a lot and tomorrow i am not even getting out of bed as i need to go backto work on monday and for that i need to be well.
Having an extra day ofthis week has made a lot of differernece and it wasnt until i started to rest that i realised how exhausted i am!! thank god i have such a caring and understanding manager and work collegues, i hate not being able to keep up and feel like i am letting people down all the time!!

To sum up this week has been horrible full or tears, fears and me being terrified that i cant cope. partly this is because i feel so frustrated with myself  for not being able to keep up and partly angry that the future seems so bad! at one point in the week i couldof quite easily just give up and walk away from it all!!i then hit reality fast and realised that this didnt just effect me but the people around me, my close friendy and family who have stood by me through thick and thin must also be as terrified of what the future holds and i was failing to see this. For there sack i cant give up and have to carry on.
Inloads of pain tonight and again coughing up blood so i think time for some strong painkillers and rest i think!! more positive sarah will be back soon

xxx

day of enforced rest!!

well after what was beginning to be a horrid week it all came to a head yesterday! i managed to collapse into my managers arms!! luckly no hospital as convinced them i was fine, although felt really dizzy i was!! spoke to doctor and it seems i have a virus and the fact i hade reduced my steroids had caused a bit of a crisis!!
anyway had a forced day of today and i think i needed it, eventhough i have been bored stiff i have rested loads and will be doing for the whole weekend!! i guess this is my bodys way of saying enough is enough and i have no choice but  to listen!!
chest grumpy this afternoon so had to ring nurse for advice and have agreed to increase pred and start antibiotice to avoid admission!!
anyway all in all the week ended ok and i am lookinh forward to a new start on monday lets hope things are ok by then!!

what a day!!

why is it you only think you shouldnt of said that until you have alleady said it!!
Well that is exactily what i did today, all in frustration and anger but more ant myself than anyone else but took it out completely on other!! i was so bloody angry that i just couldnt do what i needed to as my body is so bloody useless that i completely lost the plot!!!! now feel awful and not a lot i can do about it!! is it time to give up? i think it is i have no more fight left in me and i dont really care anymore!! that sounds so depressing and im not i just cant see a point in the future!!!
well i guess tomorrow will be another day and another day of me not being  able to do all that i want or need to and letting everyone down!!!
lets hope things look different in the morning or i dont know what i am going to do!!

xxx

another busy week!!

well another week has gone by and still no further forward!!
i am finding my ou course harder than i thought it would be, not so much the work but the keeping up! i am going to make a lot of effort to catch up this weekend!
Health wise, no change i have been struggling with swollen ankles and as a result of blood tests, my kidneys and liver function was not normal (what part of me is ever normal)!!! i also have had some probems with coughing up blood which has been a bit embarrasing especially when i am at work, anyway i saw my respiratory nurse at surgery and she was as usual lovely and after lots of discussion about increasing symptons and  couging up blood (to the point where i have managed to ruin a couple of work tops)!! it was decided that i needed so antibiotics for an infection!! so started then yesterday and now feeling yuck and sick as i think they are affecting my theophyllin levels so thats my weekned ruined!! I have an appointment with her again on monday and i hope things have improved otherwse i am not sure what will happen!! I received a letter from the brompton for an appointment on wednesday next week and feel like telling them its a bit bloody late, im still waiting for southhampton but its only been a couple  of weeks!!
not been a nice week generally, people think they can go around upset others just for the sake of it and i dont see how people can enjoy that!!!!
I dont have much else to say as partly to tired and partly cant be botheres, life seems so hard times and i really cant be bothered to get involved in it right now, i am kind of riding the storm and see what comes out the other end as that seems the only way forward!!
enough moaning from me
sarah!!

long over due update!!

i cant believe how long it has been since i have written anything here!! its been a bust couple ofmonths and not much has changed. work wise i am now working less hours which is better, i have also started my ou course which is proving harder that u thought but i am surei will get the hang of it soon. i am also now gettind dla which has meant i have a new car and can work less hours. it was hard to accept at first and hate seeing myself as disables,i guess  i still dont sometimes as i think i have to stay positive and be independant.
health wise nothing has changed, i am again writing this post admission to local hospital, this time was scarey, i had a bit of a coldso went to the surgery and saw the lovely nurse for advice, we had a discussion that involved her telling me i wasnt welland needed to go to hospital whilst i was saying i was fine, well i lost and an ambulance was called and ended up going to hospital under blues and twos!! the next thing i new i wasin resuss and then a matter of hours later in itu being pumped thorugh of drugs. really scarey considering i was sayng i was fine a few hours later. i felt so poorly in the end i couldnt of cared if i lived or died. anyway a few days later after lots of rest, drugs etc i was back on normal ward and things improved enough for me to go home. since i have been home i have been struggling to come to terms with the whole situation, i have had some many emergecy trips to hospital in thepast years you get used to them but how many more can i handle im not so sure!! ended up havbing a horrible week of snapping at other people including my best friend which really isnt fair as no one else is to blame. i guess i just feel like itsnot fair what is happening and how i can do nothing to stop it. i never reallised how much my situation effected others and one person made me relaise that it hurt her evrytine i was ill and she didnt know what was going to happen, she is my best friend and i never want to hurt her, fingers crossed i am feeling more myself now and back to being more positive after speaking to someone who made me realise that you have to be positive and concentrate on today as no one knows what tomorrow brings.
one good thing that came out of recent admission was that i got a referall to southhampton hospital so no more going to the brompton as i was not getting anywhere with them so fingers crossed maybe some answers soon/
well what a load of waffle that was but feel better for getting it of my chest
i have a busy week ahead of hospitak appoinemtns and on tuesday i am seeing hospital nurse andi am going to tell her how i feel as maybe she can help me understand it all.!!