Oh well another week of feeling like poo and generally getting fed up with it all.
Changes need to be made i think but im not sure what for the best.
I saw my local consultant on monday and had a really good chat with him about everything, he doesnt have a lot to offer and whilst i knew he would say that i was kind of hoping he would have a magic wand. of course he didnt.  He did recommend some patches for  pain and well that was a disaster, put it on and within hours i was nearly unconscious aparently i looked like i was on drugs and was very funny. The moment i said i didnt even have the energy to breath it was taken of and thankfully i felt better in a few hours, i think i may have  to put up with the pain!!
Had ar eally horrid chest all week and it turns out after trips back and forth to hospital that i have pneumonia, steroids and antibiotics  increased and finally i think we are winning as although i am so tired i do feel a bit better. The one good things is that i have managed to stay out of hospital and that is a miracle.
I am so thankful to all those around me that have been so supportive, i really am grateful.

I have done lots of thinking this week and need to start making some changes, i think i have to try this salycilate free diet and see if it makesany difference, i also feel like i am getting really unfit i keep thinking of going swimming which i used to love but soemthing stops me, i really need to look into it this week as i feel like i have to keep myself as physically fit as possible.

Oh well  im waffling now